Dear Necro, have you considered hypnotism for the terrible pain which you are suffering? It cannot cure your medical condition, but it can stop you feeling the pain. Even major operations have been carried out under hypnosis rather than using anaesthetic. It is possible and it does work.
I don't know where you live, as your profile doesn't say. But you can look on the net for a hypnotherapist near you, preferably one who specialises in pain relief.
If you live in a very remote area, or cannot afford a treatment, then there is always the possibility of self-hypnosis via recordings. You do not have to suffer pain.
Every best wish to you!
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