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Here is a little personal story about my "curse" and what I have learned from it.
I have a disability and I am on the disability pension.
For years, I have been getting help and support from peer support workers, personal helpers, welfare agencies and the like, just to manage my daily living.
From March next year, the government is going to cut ALL funding to welfare agencies and disability support services, introducing an insurance scheme instead, called the NDIS to fund people on an individual level and not fund the services which provide for them.
My peer support worker is helping me fill in my claim for the NDIS.
Now, in order to receive this assistance, I need supporting letters of my physical and mental conditions, from all my doctors, specialists, GP, medical services and the like..
So I go and speak with my psychiatrist about it and humbly request a certificate and get him to sign an "access form"...his reply:
"I'm sorry, but as soon as I put my name to anything and sign it, it becomes a legal document which I can be personally subpoenad over, thus dragging this practice into ongoing legal problems...The solicitors of this practice have told us not to do this...So I really can't help you out there".
So, I go and see my psychologist with the same request...her reply:
" You are visiting me under Medicare and Medicare only covers your visit to me and NOTHING else, certainly not any extra time I must spend in writing any reports and such.. I need to be PAID for doing so because my time is both precious and limited. You are looking at $400 for me to do such a thing...I'm sorry"
So I go and see my GP:
"Have you any idea how many of these things I have been asked to do? There just aren't enough hours in the day and so I've had to say no...and if I say no to one person, I have to say no to everyone..I'm sorry"
So, I go and see another specialist.
"This practice does not support the NDIS, so there's no way I am going to provide a letter OF support for you to join it...I am sorry".
I tried to obtain a copy of my OWN medical records under the "freedom of information act" and I get told.." I'm sorry, but those records are sealed...do you have a court order?"
On and On this went, until I finally just gave up and told my peer support worker what happened..her response?
"I have done thousands of these applications and I have NEVER come across any of that before...ALL of my other clients applications went through smoothly and without any problems.. doctors were only to happy to fill in reports and forms".
So, I invited her to go back with me to all of my doctors, specialists and everybody I see for my conditions, and they told her everything they told me...she could not believe it...she refused to believe it... stammering "these... things... just.... don't....happen" and she was that angry, she was almost in tears..
Then I had to explain to her that this was not her fault, because I am ALWAYS the single and sole exception to the "general rule of thumb" and it is an aspect of my life I have to learn to deal with..."my case" is always going to be the exact opposite of "everyone else's case" because I am NOT everyone else.
For ages she has tried to help me, to achieve those goals I have set for myself, to make friends, but she has witnessed first hand how the universe gets in the way of anything I WANT to do, totally preventing it, or how people turn and run as soon as I smile and say "hello".
In the past two years, I have had seven support workers, and all have quit the job with the service within weeks of meeting me...I have a "revolving door" of personal helpers, because their lives all seem to go to hell within a short time after taking me on as their client.
What I have learned from this experience, is that I have NO "free will" to do ANYTHING I want..and God does this to me because He requires my earnest supplications and surrender and if I do NOT do that, He is going to make sure that my own life goes to hell because He is totally jealous and possessive that way...
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