All my very best to you Justin, and may you have many blessings, even through these great difficulties.
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Thanks to everyone who responded for your warm messages.
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You're most welcome sweetheart (I hope its ok to call you that, if not just let me know)..xx
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hugs & blessings.... Justin and Jon
Dream Angel xx |
Thanks Dream Angel :)
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Dearest Sparrow :hug2:
There is something very mysterious.... yesterday I was drawn to your thread, and as I was reading backwards :D, a new talent I have recently acquired, lol .....I noticed a reply from you to me that I had missed ! :icon_eek: not sure how that happened as I am always usually very attentive to your replies, my apologies to you ! Anyways, just now I was going to reply to you and now I can't find your post.... I have looked 3 times, which I have heard is a magic number. Then I thought perhaps I was in a different thread of yours , so I glanced in one of your other popular threads and no, it wasn't there either. How can something just mysteriously disappear ? I am thinking the date was the end of August ( I know, way too long ..... ) or did you write me in invisible ink that disappears after a certain amount of time ? :tongue: If I recall, it may have been something about ' signs ' that we were talking about. much love, always Dreamie xx |
Well, now I am strongly considering ostomy surgery. I have had it before and it was very traumatic for me at the age of 12. However, now it seems it could be a good option for me. It would not cure my disease, which would likely manifest in other ways later, and it would be difficult to live with, but it could eliminate so many of my most intensely painful, debilitating, heart-wrenching symptoms--Severe sharp rectal pain when having the urge for a bowel movement, constipation due to inflammation and stricture, exhaustion from bowel movements, incontinence during sleep. I am feeling more optimistic but I am still attached to wondering about the outcomes. I believe this surgery could extend my life and improve my quality of life for some time. I am also making progress in my Qigong practice, especially now learning to expand and contract my aura in rhythm with my breath. It leaves me feeling very good, and hungry, as if I am had a big workout, but not tired.
It doesn't really make sense for me to look to you for validation of my feelings. Feel free to comment on the previous post, but know I understand what you were saying in the past, about that sort of thing. Justin Quote:
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Dear Justin,
I am really, really sorry. I am not pitying you because you are an amazing spirit, and that spirit does not need pity. I am giving you a hug from my heart, because it is not easy, going through the physical world. I am wondering if we are some kinds of heroes to decide to incarnate here in the first place! Neither do I mean what I say as a platitude. But your heart does shine, and one day you will know -why you had to endure these things. It won't be long. Shine the best you can,:hug3: until it's over one day. All my love. Sylvia....and the bright little spirit who is Misty. |
Many blessings and much love to you Justin!
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WOW. That was the most AMAZING thing I've ever read... My daughter, 4 1/2 years old, has Pompe Disease - Infantile Onset. It's a fatal muscular disease - under the "MD umbrella." Genetic - (had no clue my husband and I were carriers of it). Odds are 1 in 100K. Zoe has the MOST BEAUTIFUL SOUL. ***I had a "lightbulb" moment - reading what you had put down...!!!*** She won't have weak muscles after she dies. She'll be able to run PERFECT and not have sore muscles later that night. She won't have to get 6 hour infusions of an enzyme therapy - via port - every other Friday (which is obviously horrible for a 4 year old - she's done that since she was 5 months old). She won't have ANY of the "issues" she has now, and the horrible "issues" she'll have, later in her life - however long that may be... Thank you for actually, for the first time, having actual hope. It KILLS ME that I can't "fix" her, or take her disease onto myself. :hug3: Elizabeth |
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